Here are links to support groups and other families stories:
http://mpssociety.org/
http://www.dailystrength.org/c/Mucopolysaccharidosis/support-group
http://www.babysfirsttest.org/newborn-screening/conditions/mucopolysaccharidosis-type-ii
http://heresjack.com/
http://mpssociety.org/
http://www.dailystrength.org/c/Mucopolysaccharidosis/support-group
http://www.babysfirsttest.org/newborn-screening/conditions/mucopolysaccharidosis-type-ii
http://heresjack.com/